Item | Content |
---|---|
Research project name | Practical Research Project for Rare / Intractable Diseases |
Study title | Development study of the world’s first early diagnostic marker and treatment by integration of clinical study on peripartum cardiomyopathy (omics and biochemical analysis) and basic research (model animals) |
Name of principal investigator | Chizuko Kamiya |
Name of institution of the principal investigator | Perinatology and Gynecology, National Cerebral and Cardiovascular Center Hospital |
Target disease | Peripartum cardiomyopathy |
Registry name | PREACHER |
Purpose of registry | Survey of natural history, Investigation into the number or the distribution of patients, Sample collection, Investigation of biomarkers, Genetic analysis study, Provision of information to registered patients, Provision of information to physicians in charge |
Overview of registry | Registration in the registry upon informed consent from patients and/or their families on an occurrence basis. Collection of medical information and samples (blood, tissues) from five visits a year. |
Research item | Information about the current medical institutions of patients, Family history, Past medical history, Complication, History of present illness, History of treatment, Laboratory data, Degree of severity, Clinical course, Prognosis |
Contact | |
E-mail address | |
Registry URL | http://周産期心筋症.com/ |
* If the E-mail address is shown, replace "●" with "@", please.