Continuation of the early laboratory diagnostic study and preparation of diagnostic guidelines for perinatal (peripartum) cardiomyopathy

Item	Content
Research project name	Research Project on the Rare / Intractable Disease
Study title	Continuation of the early laboratory diagnostic study and preparation of diagnostic guidelines for perinatal (peripartum) cardiomyopathy
Name of principal investigator	Chizuko Kamiya
Name of institution of the principal investigator	Perinatology and Gynecology, National Cerebral and Cardiovascular Center Hospital
Target disease	Peripartum cardiomyopathy
Registry name	PREACHER
Purpose of registry	Survey of natural history, Investigation into the number or the distribution of patients, Sample collection, Investigation of biomarkers, Genetic analysis study, Provision of information to registered patients, Provision of information to physicians in charge
Overview of registry	Registration in the registry upon informed consent from patients and/or their families on an occurrence basis. Collection of medical information and samples (blood, tissues) from five visits a year.
Research item	Information about the current medical institutions of patients, Family history, Past medical history, Complication, History of present illness, History of treatment, Laboratory data, Degree of severity, Clinical course, Prognosis
Contact
E-mail address
Registry URL	http://周産期心筋症.com/

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