| Item | Content |
|---|
| Research project name |
Practical Research Project for Rare / Intractable Diseases |
| Study title |
A cohort study on evaluation of effect and safety of long-term oral administration of Rapamycin for Lymphangioleiomyomatosis |
| Name of principal investigator |
Toshinori Takada |
| Name of institution of the principal investigator |
Uonuma Institute of Community Medicine, Niigata University Medical and Dental Hospital |
| Target disease |
Lymphangioleiomyomatosis |
| Registry name |
Cohort study on lymphangioleiomyomatosis |
| Purpose of registry |
Survey of natural history, Investigation of biomarkers
|
| Overview of registry |
Investigation of the items investigated in the MLSTS trial in addition to the items in the personal clinical investigation form for specific diseases in 54 patients who submitted informed consent at visit 12 of the clinical trial between 2015 and 2017 among LAM patients registered in the MLSTS trial
|
| Research item |
Date of birth, Information about the current medical institutions of patients, Complication, History of treatment, Laboratory data, Clinical course, Prognosis, Cause of death
|
| Contact |
Toshinori Takada |
| E-mail address |
ttakada●med.niigata-u.ac.jp |
| Registry URL |
|
* If the E-mail address is shown, replace "●" with "@", please.
