Item | Content |
Research project name |
Practical Research Project for Rare / Intractable Diseases |
Study title |
Development of evidence for deep brain stimulation (DBS) for refractory Tourette’s syndrome |
Name of principal investigator |
Yukiko Kano |
Name of institution of the principal investigator |
Department of Child Neuropsychiatry, The University of Tokyo Hospital |
Target disease |
Refractory Tourette's syndrome |
Registry name |
Refractory Tourette's syndrome |
Purpose of registry |
Comparison between DBS-treated group and DBS-untreated group
|
Overview of registry |
This registry collects data on history of present illness, family history, development history and past medical history of tic and complications. Data on tic, complications and indications will be collected during a certain period after the trial for the DBS-treated group and after diagnosed with refractory Tourette’s syndrome for the DBS-untreated group.
|
Research item |
History of present illness, History of treatment, Degree of severity, Clinical course, QOL
|
Contact |
Yukiko Kano |
E-mail address |
kano-tky●umin.ac.jp |
Registry URL |
|
* If the E-mail address is shown, replace "●" with "@", please.